Pediatric Celiac Symptom Index: Development of a patient-reported outcome measure for children with Celiac Disease using a mixed-methods approach

Lee Hill, Research Coordinator, Division of Gastroenterology, Department of Pediatrics

PI: Dr. Jenna Dowhaniuk, Assistant Professor, Department of Pediatrics

Patient-reported outcome measures are instruments used to measure outcomes of healthcare using a patient-centred approach. The aim of our research is to develop a pediatric celiac symptom index using a mixed-methods approach. The methods include a scoping review of the literature, qualitative interviews with patients and their caregivers, cognitive interviews once a preliminary Index has been developed, and finally a quantitative analysis of the Index. The research is being conducted over two phases and is currently nearing the completion of the first phase.

Objectives:

1) Understanding the role of mixed methods and how it can be applied to research.
2) Understanding the development of a patient-reported outcome measure
3) Understanding the barriers and facilitators to conduct a mixed methods research study.

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