Pediatric Celiac Symptom Index: Development of a patient-reported outcome measure for children with Celiac Disease using a mixed-methods approach

Lee Hill, Research Coordinator, Division of Gastroenterology, Department of Pediatrics

PI: Dr. Jenna Dowhaniuk, Assistant Professor, Department of Pediatrics

Patient-reported outcome measures are instruments used to measure outcomes of healthcare using a patient-centred approach. The aim of our research is to develop a pediatric celiac symptom index using a mixed-methods approach. The methods include a scoping review of the literature, qualitative interviews with patients and their caregivers, cognitive interviews once a preliminary Index has been developed, and finally a quantitative analysis of the Index. The research is being conducted over two phases and is currently nearing the completion of the first phase.


1) Understanding the role of mixed methods and how it can be applied to research.
2) Understanding the development of a patient-reported outcome measure
3) Understanding the barriers and facilitators to conduct a mixed methods research study.

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