TRansition-US-Together (TRUST) study: An educational toolkit to support adolescents with chronic disease and their parents as they transition to adult care

Dr. Michelle Batthish, Associate Professor & Division Head, Pediatric Rheumatology, Allergy & Immunology, Department of Pediatrics

The transition from pediatric to adult healthcare is a vulnerable period among patients with chronic disease.

Promotion of health self-efficacy and continuing attention to self-management is associated with better health-related quality of life.

Parents and caregivers face unique challenges as they struggle to define new roles and responsibilities in their child’s care.

Objectives:

1- To review the methodology addressing two of our study objectives.

2- Discuss how researchers should select outcomes to measure the impact of their intervention when no (validated) outcome measures exist.

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