Developing the GENDER-Q Kids: Our approach to creating a patient-reported outcome measure for children and adolescents who are receiving gender-affirming care

Shelby Deibert, PhD(c)

Supervisor: Dr. Anne Klassen

Our team is developing a patient-reported outcome measure (PROM) for children and adolescents (ages 8-18) who are receiving gender-affirming care (called GENDER-Q Kids). To create the GENDER-Q Kids, we are using a multi-phased, mixed-mixed methods approach. This presentation will focus on our phase one qualitative study. This study involves exploring concepts important to children and adolescents who are receiving gender-affirming care and forming a conceptual framework and comprehensive set of independently functioning scales.

Objectives:

  1. To review the methods we are using in our phase one qualitative study.
  2. To invite feedback on engaging youth in virtual research and working with research advisory committees.

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