The ABCs of PROs

Dr. Anne Klassen, Professor, Department of Pediatrics, &
Shelby Kennedy, PhD Candidate

To measure the success of pediatric health care, it is important to ask children and youth how they function and feel before and after they have treatment. A special type of questionnaire called a patient-reported outcome measure (i.e., PROM) is carefully designed for this specific purpose. PROMs are important in health care because they measure things that matter the most to patients rather than ask about things that matter the most to health care providers or researchers. This presentation will provide examples of how to develop and validate a PROM based on the GENDER-Q, a new PROM designed to measure outcomes of gender-affirming care.

Learning Objectives:

  1. To learn what a PRO is and why they are important.
  2. To learn how a PROM is developed and validated.
  3. To learn about GENDER-Q as an example.

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